Today is World MS Day, so I thought I’d better take part by writing a blog post!
I don’t have an awful lot to update you with, as my time and energies have been taken up with non-MS matters lately. I have been off work this week (half term) and have spent the time catching up with jobs I can’t manage during a working week, as well as seeing friends, which has been great. I even managed an all day birthday celebration on Saturday, leaving the house at 10.30am and getting home after midnight! I really was proud of myself for lasting so long and it was a lovely fun day. I spent most of Sunday resting and recuperating but it was worth it!
I also want to tell you about a new MS charity which has a particular focus on supporting people living in the UK to access HSCT. The charity began about a year ago and is managed by volunteers, all of whom have either had HSCT themselves or have supported a partner having treatment.
Their aim is to provide advice and guidance on HSCT treatment both in the UK and abroad (at the moment they are only recommending Russia and Mexico). They have also started raising funds and hope to be in a position to provide grants to people needing financial support to access treatment.
Here’s an amazing video showing how HSCT has changed the lives of many with MS.
Don’t forget, Matt’s Lake Windermere 1 mile swim is coming soon ….
