141 Funds Update

I want to start this blogpost by saying a huge thank you to family, friends and other donors who have been in touch since my last post. It has been really helpful to hear your thoughts on what I should do with the remaining funds raised.  Everyone seems to be in agreement – people donated (or ran / sold things / came to an event) because they wanted to help me deal with my multiple sclerosis.  If HSCT is no longer the right choice to deal with my MS, the funds should be spent on whatever is.  I am so grateful to you all for your thoughtfulness and support 💛

I will be still making a donation to AIMS, as it is important to me that I do what I can to help others to access HSCT. You can check out the work of this small UK based charity by clicking the link below 💜

Once I have transferred money that needs to go to other places, there will be around £16K remaining.  This will be a huge help to me in the future as I progress to needing additional equipment to help me to stay independent.  I can’t tell you how reassured I feel, knowing that this money is there as a safety net.  Thank you again ❤️

It has taken much longer than I planned, for me to write this post, as my summer hasn’t really gone to plan.  Unfortunately, at the end of July I caught Covid 19 and my recovery has been slow.  I was prescribed antiviral medication (Paxlovid), which dealt really well with the virus, but brought a range of difficult side effects.

I am very grateful that this medication was available to me (big up the NHS 💙) and was so pleased to get my first negative lateral flow test on 6th August.  The last few weeks have been difficult and I am struggling with fatigue, weakness, shakiness and ongoing headache.  Hopefully this phase won’t last too much longer and I’m in contact my GP in the meantime. 

That’s it for now … I’m hoping to be back to full strength soon and to get back to blogging about wider MS topics and how I’m working on living my best life ❤️

💜 AIMS HSCT | Aims

🤢 Paxlovid Mouth https://www.verywellhealth.com/paxlovid-mouth-what-to-do-6361685