98 The wait goes on

This may be my shortest blogpost ever!

I’ve had various friends and family asking about news from Sheffield, so thought I’d do a quick post to report that I’ve heard nothing at all!

I’ve had a really busy couple of weeks, so haven’t had time to phone the hospital again.  My life becomes a little quieter from Thursday so hopefully I’ll be able to do it then.

I am in contact with a fellow MS Warrior online, who had his first appointment with Professor Sharrack on the same day as me.  He has been allocated a November follow up appointment (despite also being told it would be mid August).  I have no idea what to read into this (if anything at all?!).

I’m trying not to worry to much until I hear something definite.  When you have a chronic health condition, you seem to spend so much of your life in limbo, waiting for test results, appointment dates and treatment decisions.  I’m not very good at being patient, but doing my best!

A small personal step forward I have made is to have my hair cut in a shorter style.  As HSCT involves chemotherapy, it is almost certain that I will lose my hair.  Many of those going for treatment adopt a shorter hair styleto help prepare themselves for the shock!  Anyway, here is the result …

Thank you so much Shelley at Essence Hair Studio