There has been a lot going on over the last couple of weeks so thought I’d come back with an update.
Sheila ran another stall at the Vintage Village on Sunday and raised a very respectable £116. Alan very kindly sold a few items of clothing through his vintage shop, 20th Century Stores and raised a further £90.
So the vintage sale fundraiser had brought in a grand total of …
Thanks again to Alan and the Vintage Village, but most of all, to my lovely friend Sheila for so much hard work and for all your support 😘
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Thank you to family and friends who have decided not to send Christmas cards this year and to make donations to my fund instead. This has raised a total of £470 …absolutely amazing! Thank you everyone 😘
We had hoped to hit £20,000 by Christmas, but with all these amazing efforts, our grand total now stands at …
I had an appointment with my neurologist on Monday …always a bizarre experience. Neurology services are obviously over stretched and trying to summarise a year’s worth of symptoms, concerns and questions into a rushed 10 minute appointment isn’t easy. By the end of the appointment, it was agreed that he will refer me to occupational therapy, write to Professor Sharrack and prescribe medication to address my fatigue and brain fog (assuming liver and kidney function tests are all good). He also suggested I stay off work until the end of term.
I have heard nothing further from Professor Sharrack and will find the energy to chase him again soon.
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Today I managed to fall down the stairs …I’m not quite sure how this happened, but I think my legs just gave way beneath me and before I knew it, I was on the floor at the bottom of the stairs!
Luckily I only have bruises, but I must admit I’m feeling a bit shaken by the experience. Steep Victorian staircases are not best ever for MSers it would seem!
I have only lived in this house for a little over 2 years and I was obviously aware of the unusually steep stairs, but had no idea how much of a challenge they would become for me. I mostly go up them on all fours, which seems to work well. Coming down stairs is a different matter and I really don’t feel safe a lot of the time.
I’ll add it to the list of things to worry about! 🤪
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You may remember a while ago I posted about Scott McCormick (From Gogglebox) undergoing HSCT at Hammersmith Hospital. Scott has been recovering well and has been keeping us all informed of his progress. He recently had an MRI scan – an insight into whether his MS has halted or not – today he got the results …
I am absolutely delighted for Scott. He has shared his journey on twitter and through videos he has made for MS-UK and the HSCT community has been following with interest. It has been wonderful to see him get better and better and to know that he is now looking forward to a happy healthy future with his family. I’m sure Scott will be a powerful voice for HSCT going forward and we are all very grateful to him for sharing his experience.