53 Thank you ❤️

I just wanted to write a quick update to say thank you for all the supportive messages I’ve received over the last couple of days.  I really do have some wonderful people in my life xx

I must admit, I really didn’t feel like going anywhere Friday night, but once I had got myself ready and out, I was so glad I did.  I work with a lovely team of 13 who are kind and supportive colleagues, but also great friends.   We are very busy at work and in and out of the office at different times, so it can sometimes feel a little chaotic.  It really was lovely to be able to sit and chat and enjoy the start of the festivities together.

I have included this photo as I think it is the first I have taken with my clumpy boots and walking stick.  I would have avoided taking this a few months ago, but writing this blog has helped to see that it is much better to be open about things, rather than hide away.

A highlight of Friday evening is that, after over 30 days as a tee-totaller, Julie got to have her first alcoholic drink!  She also got to try a porn star martini for the first time …I think she rather enjoyed it! 

Thank you for doing this for my funds Julie xx

After my stressful day and night out on Friday, I was totally out of spoons on Saturday.  I spent the day on the sofa, resting and recovering and felt much better today.  

I managed to get out of the house with Niamh, Sophie and assorted dogs this afternoon and to give my trecking poles another outing.  A bit of fresh air and exercise was just what I needed …thanks girls xx

I have also managed to do some research on the neurologist that I am seeing on Wednesday.  Although I have spoken to one person who had a bad experience, I also heard from others who spoke highly of him and his knowledge of HSCT.  So maybe the situation isn’t as bad as I thought after all.  I’ll write more about that next time. 

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