It’s less than a month until I make the journey to Russia for HSCT …I can’t wait!
My flights are booked and I have started packing and preparing. I’m feeling really positive and happy with my decision to do this. This disease is devastating …it gradually robs you of so much of your life and totally takes control. Now I am taking back control, fighting back, making decisions for myself rather than just letting this disease take over. Mentally, I feel better than I have for a long time.
My MS symptoms continue to cause me problems. I no longer feel safe in my own home as the stairs are so challenging for me. My house was built in the late 19 hundreds and no one thought about disabled people then! I struggle every day with fatigue, pain, brain fog and a host of other low level but concerning symptoms.
But I’m optimistic. I’m taking matters into my own hands and it feels right.
I have started buying things for my trip to Russia and preparing for my return home. I still have a lot to do and my preparations also include trying to take good care of myself, prioritising my well-being and avoiding anyone who is unwell!
My family and friends continue to be a fantastic support …I really couldn’t do this without you all …thank you ?
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We are planning a tea party as a final fundraiser and an opportunity for me to see as many friends as possible before I go.
We have had an amazing response to this event – thank you to everyone who has replied, paid or offered support. I am delighted that my brother and his family are coming up from Herefordshire and my sister is coming over from Germany… it’s amazing how far people will travel for cake!
We have a limit of 80 people for this event so if you’re planning on coming, please make your payment as soon as possible (£10 for adults £5 for children). We are happy to take payments via PayPal, so do get in touch if this would work for you.
If anyone close by has a tiered cake stand we could borrow, please let us know. We’ve already been offered quite a few and I found a lovely one in a charity shop the other day. We need at least 20, so still looking for more.
It’s half term here this week …I am so relieved! This has been the longest half term ever and every day has been a struggle.
I will be doing some more Russia preparation, catching up on sleep and have just returned from a few days away with this lovely lot …
