75 Oh what a night …

We had such a wonderful night on Saturday and managed to exceed our fundraising target!  I thought I’d post an update on the whole weekend …

A few of us arrived at Bonis Hall at around 9am on Saturday morning. We came in assorted cars and vans, loaded with equipment and drink and took on the task of converting a staff canteen into a stylish party venue. Furniture was rearranged, decorations, technical equipment and fairy lights put in place and within a couple of hours the room was really starting to take shape.  Sharon (Spoilt for Choice, Cheshire) lent us her expertise and resources and we were delighted with the end result. 

Thank you Sharon, Sophie, Connor, Niamh, Callum, Joe, Glenda, Jimmy, Gill, Anna, Zeb, Heather and Charlie ?

There was a huge display screen on the wall and our favourite graphic designer had put together a slide show to tell our guests a little about MS, HSCT and all our fundraising efforts …many thanks Dave ?

We whizzed home in the afternoon, showered, changed and glammed up, returning to Bonis Hall by about 5.30pm.  It was lovely to walk back in again with fresh eyes and see how wonderful it all looked.  

We finished a few last minute jobs and by 6.30pm our first guests began to arrive.  I was a bit of a nervous wreck by this time …like everyone else I’d been on my feet all day and also hadn’t eaten much, so was feeling decidedly wobbly! I was also a little worried about having anything to drink in case I just keeled over! 

An hour later I was feeling much better.  Lots of people had arrived and there was a lovely happy atmosphere in the room.  People seemed genuinely pleased to be there and I began to relax a little.

Our fantastic compère, Chris, opened the evening and welcomed our first performer, Ashleigh.  I hadn’t heard Ashleigh sing before, other than on a video on someone’s phone, but I had heard several people say how good she was.  This turned out to be quite an understatement!  What an amazing voice!  Thank you Ashleigh, for your wonderful singing – I’ve had so many people ask me about you and tell me how amazing you are! ?

Next up was food time!  We had lots of discussions about food on the run up to the event and a number of small hurdles to overcome.  We wanted to keep the cost low and the quality high and we also had no access to the kitchen facilities.  Thankfully our wonderful friends, Heather and Nick saved the day with their expert catering knowledge and culinary expertise and the decision was made to provide a choice of curries, with naan bread and popadoms.  The food was delicious and everyone seemed to enjoy it.  Thank you Heather and Nick xx

After the food, I managed to shuffle up to the microphone to say a few rambled words of thanks (my thanks is heartfelt, even if I didn’t manage to articulate it very well!).  

The mammoth task of drawing the raffle was next.  We had received so many donated prizes and it took quite a while to work out.  I still have some prizes in my living room, so will be contacting more winners later in the week.  We had sold a few tickets ahead of the event but most were sold by my wonderful niece, Anna, on the night. Thank you Anna ❤️

My slightly tipsy friend, Karen, then decided to embarrass me with a few words of support (thank you lovely xx).  Karen is a wonderful supportive friend and will be coming to Russia towards the end of my treatment, in order to help me on the journey home.

Then it was time for more live music from Dan and Chris, who were fabulous!  Thank you both ?

(By this time my camera skills had completely gone out of the window, so I sadly have no photos of Dan and Chris! Please send me one if you have any ?)

Edit: photo added 27.02.19 …thanks Glenda

Chris was fantastic as our compère and managed to keep everything running smoothly, despite us going off plan more or less from the start of the evening …thank you Chris ?

Whilst all this was going on, there was also a bit of face painting (thank you Tiah x), a kids activity corner,  selfie props and a football table. 


We decided to stock and run the bar ourselves, offering drinks at a great prices but still managed to make quite a bit of money.  Thank you to Jimmy and Gill from Swan Brewery who provided the beer and wine and did a lot of the leg work on the bar ?. Connor, Niamh and Sophie also spent a lot of time running the bar too …thanks all of you ?

We managed a token tidy up at the end of the night then all left for a few hours sleep.

By 9am a group of us were back at Bonis Hall for the big clean up! It was important that we got the room back to exactly as it had been, before the site cleaners arrived (otherwise we could have incurred charges).  After much hoovering, scrubbing, mopping and car loading, it was as if we had never been there at all! 

My sister, Glenda, was with me for the weekend and was a wonderful support, both practically and in helping to keep me calm!  It was lovely to have that bit of time together – Glenda lives in Germany and although we are in touch a lot, we don’t get together as often as we would like.  After taking Glenda to the airport, I went home and had a 3 hour nap!  

The busy weekend and the hectic build up have rather taken their toll on me and 3 days later, I am still exhausted, my legs are very sore and my right hand is having episodes of numbness and tingling.  

It was all worth it though …through everyone’s hard work and generosity we managed to raise …

Perhaps more importantly, it was so uplifting and heartwarming to see what can be achieved when a group of people work together with a common aim.  Despite our exhaustion, we all really enjoyed the evening and it gave us all a positive optimistic boost.  I really hope all our guests felt that too.  There really is an awful lot of good in the world ❤️

Thank you to everyone who helped to make it such a great night ❤️

GoFundMe

74 A few thank yous

With just one day to go until our fundraising evening, it’s time for me to thank a few people.  It’s been really hard work to put this event together and in particular, to do so with minimal expenditure.  We have had so much amazing support and I am truly blessed to have so many kind people in my life.  

I’d like to thank the following for their amazing generosity…

  • McCann Manchester for letting us use their fabulous venue.  A special thank you to Joe for arranging this for us.
  • Sharon from Spoilt for Choice, Cheshire for decorating the room.
  • Dave Gilmore from David Gilmore Design for all his hard work with the tickets, slide show and various other graphics.
  • Swan Brewery for providing all the beer and lots of other help and ideas.
  • Heather and Nick Chick, chefs extraordinaire, for preparing the food.
  • Our wonderful musicians …                          

Ashleigh

Dan and Chris

  • Everyone who has donated raffle prizes.  We have received so many lovely items and we are touched by your kindness.  The following businesses have also kindly donated …

Essence Hair Studio, Heaton Chapel (find them on Facebook and Instagram)

Seed Beauty, Edgeley (find them on Facebook and Instagram)

Droylsden Subaqua Club 

The Vintage Village, Stockport

Inspire Travel

The Bun & Bones Club, Hazel Grove (find them on Facebook).

Many friends and family have pulled together to help get things in place, but I’d like to give special thanks to Connor, Niamh and Sophie who have given up a lot of their time to take the pressure off me and make sure everything is in place for tomorrow.  They really have been amazing!  Also, thank you to Glenda who has travelled over from Germany and to Jimmy, Gill, Anna and Zeb who have come up from Herefordshire for the weekend …your help and support is very much appreciated.

Lastly, thank you to everyone who has bought a ticket and also to the people who are unable to come but have made a donation.

See you there! ????

GoFundMe

73 Three days to go!

The last couple of days have seen much activity as we prepare for our evening fundraising event this Saturday.  I thought I was quite an organised person, but even with multiple lists coming out of my ears, it all feels a bit manic!


Niamh has spent this evening sorting out the raffle prizes, while I made lists for a seating plan, further stuff to buy, timings for the night, jobs still to be done and people still to contact. 

We have money in envelopes and scribbled notes on bits of paper all over the place. 

My friends and family have been an amazing support in getting the event organised and it finally feels that everything is coming together at last.  I’m so pleased that my brother and his family will be coming up to support the event and my sister is flying in from Germany …can’t wait to see them all.

Our ticket sales have exceeded expectations, which is a huge relief.  We still have a few left, so do let us know if you’d like some.  We also aim to have some on the door for any last minute guests. 

Some useful information …M

? The address for the event is Bonis Hall, Bonis Hall Lane, Prestbury, Macclesfield SK10 4EF. 

? Start time is 6.30 …we went for an early start as we thought it would suit those bringing children (please let us know if you are,  so we have a rough idea of numbers). 

? There is plenty of parking and we have been given permission for cars to remain there overnight, if you wish to get a taxi home and come back for your car the next day.  (Cars left at owners’ risk). 

? As a rough guide, the cost of an Uber from Bonis Hall to Hazel Grove is £10.

? There will be a well stocked bar selling Swan beer, lager, cider, wine, Prosecco, gin, vodka, Pimms and a range of soft drinks.

? Payment for drinks can be made by cash or card (there will be a 20p charge for each card transaction). 

? We will be serving a curry supper (vegetarian / gluten free option available too).

? Raffle tickets will be available to buy on the night. 

? We have a couple of live performers who are kindly giving their time for free (thank you so much Ashleigh, Dan and Chris).

???? I hope everyone has a great night and look forward to seeing you all there xx

68 Tickets, ticket, tickets!

The tickets for our fundraising event are finally ready! 

I’d like to thank Dave Gilmore for designing and printing them and Niamh for cutting and perforating them. 

Tickets are £10 each, children under 10 are free (please let us know if you are planning to bring children so we have an idea of numbers).

The evening will start at 6.30pm and will go on until midnight.  We have a few live music acts lined up – dancing and singing along most welcome!  There will be a bar, selling Swan Brewery beer and various other refreshments. 

We have a few items that we plan to auction – this will begin online in a couple of weeks and end during the evening (more info to follow).

Raffle tickets are also now for sale.

We have had lots of amazing raffle prizes donated, with new items coming in all the time.  Raffle tickets are 50p each.

A small selection of raffle prizes


If you have anything you could donate or know of any shops or services who may be willing to provide a voucher, we’d love to receive them …the more prizes we have, the more raffle tickets we’ll sell and the closer we’ll get to our fundraising target. 

All business donors will be mentioned in this blog, on our social media pages and on the night.

If you would like to see more of Dave’s fabulous work (including the Manchester bee paper straw design) please see his website …

davegilmoredesign.com

You can find out more about Swan Brewery here …

swanbrewery.co.uk

If you would like to make a donation to our fundraising account, please do so here …

GoFundMe

Please spread the word!

Thank you again for all your support ?

65 Let people in; they can handle it

I read this interesting personal account today and realised I have the same issue as Trish – I am so determined to remain independent and self sufficient that I tend to hide my MS struggles and don’t often ask for help.  

MS Lesson Learned: ‘Let People In; They Can Handle It’

Yesterday I met up with three dear friends who I’ve known for years and would trust with my life – we can (and do) talk about anything and everything, we’ve supported each other through all sorts of ups and downs, over many years, yet still I minimise my struggles.

Thinking about this, I realise it’s because I don’t want the people in my life to see me differently …even though I am different now.  Maybe I am struggling to accept that myself? 

—————————————————

I am very happy to tell you that we finally have a plan in place for our evening fundraising event on Saturday 23rd February.  Tickets are being designed and printed as we speak and will be available to buy very soon.  Tickets are £10 and will be available soon. 

Bonis Hall

As mentioned before, the venue is Bonis Hall, the home of McCann Manchester, who have kindly agreed to let us use their Bistro area for our event.  Special thanks to Joe for setting this up for us.  

The event will start at 6.30pm and we have an evening of music, food, drink and fun planned.  Children are welcome too (please let us know if you are bringing children).  

We are hoping this will be a successful fundraiser for us and a fun night for all.

We will be selling raffle tickets before and on the night and already have a fantastic array of prizes.  If you have anything you could donate as a prize, please do get in touch.  Unwanted Christmas presents, vouchers for services or anything else you can think of! 

We still have some other fundraising events coming up …Callum’s head and chin shave, Team Stephenson’s are taking part in the Gung Ho Infaltable 5K, Glenda will be taking part in a Nordic walking event and the lads will be completing their Mountain Bike Challenge

GoFundMe


63 Work life balance

Today has been a very strange sort of day for me.  I work in education so have school holidays (I know I am very lucky). During term time, I work hard and over recent months have started to struggle.  I found my MS fatigue and other symptoms  impacted on my daily life and it was getting to the point where I was cancelling social events and spending all my non-working time trying to recover from the working day.  

Towards the end of last term, my life consisted of work/eat/sleep and not much else and it started to get me down.  In December, I made the decision to reduce my working hours to 4 days per week, instead of 5.  The reduction in income is a bit of a worry, but I am hoping to achieve a better work/life balance and to have time and energy to see friends and to manage everything else.  

So today was my first non-working term time day!  I didn’t do anything exciting – a bit of resting, a bit of cleaning and sorted some paperwork – but it feels good to be entering the weekend with a little more energy and with a few jobs out of the way. 

Tomorrow, George will be bravely taking on the challenge of the Runthrough Victoria Park Half Marathon, despite suffering a chest infection, which has impacted on his training.  Good luck George!  Please take it easy and just get yourself over the finish line in one piece!

JWe are not quite ready to give full information just yet, but I hope lots of you will come along to our evening fundraising event on Saturday 23rd February.  The venue is the beautiful Bonis Hall in Prestbury. 

We are in the process of organising music, food and drink and hope it will be a fun night for everyone.  If you can help in any way, please do get in touch. 

We are also planning on holding a raffle and are now in the process of collecting prizes.  Do you have anything you could donate? Unwanted Christmas gifts? Access to services?  Do you know anyone associated with sport or TV who might donate signed items or event tickets?  

Many thanks to everyone who has already offered items – I will be in touch soon. 

Thank you again for all your help. 

GoFundMe

40 Cakes, cakes cakes! ?

Yesterday, the Herefordshire arm of the family held a coffee morning, cake sale and raffle to raise funds for our campaign.  

Jimmy and Gill have a brewery business and have been selling raffle tickets to brewery visitors for a few weeks now.  They managed to gather some super prizes from the local community, as well as donating some of their own produce.  

 

Gill is renowned in our family, for her amazing culinary skills, which she seems to have passed on to Anna and Zeb!

 

The event took place in their lovely home and it looks as if it was lots of fun.  Anyone who follows Swan Brewery on Facebook will know that Gill never misses an opportunity to dress up and this was no exception.

And just look at those amazing cakes! 

There were a few cakes left at the end of the morning so Anna and Zeb packed them up and sold them to some of the spectators at the village football game in the afternoon. 

Today, they have managed to count all their takings (including a jar of pennies donated by their neighbour!)

The grand total of all their hard work is …

This brings our grand total past the £6,000 mark ..I am so grateful to everyone who has helped us to get this far ?

Thank you for all your efforts Anna, Zeb, Gill and Jimmy and also the people of Wellington and customers of Swan Brewery ?

You can find out more about how Swan Brewery was born, their environmentally friendly ethos and their amazing selection of beers here …

www.swanbrewery.co.uk

They are also on Facebook and Twitter. 

In other news…

The cycling lads are out in the freezing Peak District as I am writing this …I’m just hoping they manage to avoid the snow that has fallen there over the last 48 hours! 

We now have so many local musicians volunteering for our evening event in the new year, that we may need to have two events! 

We are planning to contact local media at some point but things are already starting to happen without us doing anything!  I have been contacted by a company who are making a documentary for Channel 4 about people funding their own medical treatment and Niamh has established a contact at Smooth Radio.

In the meantime, please follow us on Instagram and Twitter and share with your contacts.  Thanks again for your continuing support ?

gofundme

 

35 Fundraising news

Well, a couple of days ago, this happened …

100 donations in one month!!  Thank you so much each and every one of you xxx

The sponsorship money from the Manchester Half Marathon is still coming in so I don’t have a total for that just yet. 

Connor, Alex and Gleaves have been out training on their mountain bikes today.

Having said that she’d never run again, Niamh, along with Callum, Jess and Jake, has signed up for the Wilmslow Festive 10K run on 25th November.  She is still resting up to allow her hip injury to heal, then all 4 will be training in earnest!  

We also have some other fundraisers coming together …

My Prosecco loving friend, Julie, is giving up booze for a whole month! 

My niece Fiona has signed up for a 10K and my sister Glenda, for a sponsored Nordic walk event.

My sister in law, Gill is hosting a coffee morning next weekend, including yummy cakes (she is an excellent baker) and a raffle.  

I’d like to hold some sort of cake related event too …I seem to have so many cake making friends!  Maybe some sort of Bake Off or something along those lines?  Or a good old fashioned cake sale? Or something Christmas related?  If anyone has any ideas, please give me a shout.

We are still working on a possible sky dive and a long haired person is considering a drastic hair cut, in exchange for donations …watch this space for more information on that soon!

We are planning an evening event to take place in January.  We have a fabulous venue and plans coming together for music, food, drink, a raffle and a silent auction.  

So, this is my next request for help …

  • Do you have anything you could donate as a raffle prize or silent auction item?
  • Do you own a business and would be able to donate services, a beauty treatment, a meal or anything else we could raffle or auction?
  • Do you have any contacts at venues who could donate event tickets?
  • Do you have a connection to anyone famous who could donate items?
  • Do you have connections with anyone who could help with any of the above? 

If you can help with any of the above, or you have any other ideas for fundraising, please give one of us a shout.

23 Fundraising update

Two weeks ago, we launched our fund raising page with the aim of raising £40,000 to fund HSCT treatment abroad.  

www.gofundme.com/another-ms-warrior 

Please could I ask you to think about whether you might know anyone who might be willing to help?  Please share our fundraising page far and wide.  I know of someone in my position who had their treatment paid for in full by a wealthy friend of a friend of a friend who saw the link on social media! 

I am finding fundraising hard going – it really isn’t easy to ask people for money and at times, I have wanted to scrap the idea all together.  I feel incredibly vulnerable and exposed having to be so public about my life.  My children, close family and friends are being wonderfully supportive and are encouraging me to keep going.  To put it bluntly, my only other option is to keep quiet and slowly decline into disability. 

To boost our fundraising efforts, we have a number of events coming up:

1. Manchester Half Marathon, Sunday 14th October 2018

Connor, Niamh, Gleaves, Nick and Heather are training hard for this event and the blisters on Niamh’s feet are almost healed!

2. 58 Mile Peak District Mountain Bike Challenge, Saturday 27th October 2018

Alex, Connor and Gleaves are taking on this gruelling challenge

3. Tandem Sky Dive, date to follow

Callum is organising the opportunity for volunteers to take part in a tandem sky dive and hopefully raise some sponsorship money. We have a growing list of people 

Who would like to do this (possibly including me!) …if you would like to be added to the list, please let me know.  Cost will be around £200.

4. Evening Event, January 2019

This will be an evening of music food, games, raffle, auction and anything else we can think of!  We have a fantastic venue in Prestbury and some great entertainment lined up, including The Red Shells and Beth and the Beats.

If you have anything that you could donate as a raffle prize or auction item, we would be very grateful.

There are further events and sponsored challenges in the pipeline, so watch out for those.  We are also open to further ideas and suggestions. 

If you’d like to sponsor any of the participants taking part in sponsored events, please donate to our GoFundMe page and mention them in your comment.  You can also sponsor individuals by contacting them in person.

If you know of any businesses that may be willing to offer items or services as raffle prizes or auction items, please get in touch with one of us. 

Thank you for all the amazing support …I really do appreciate it xx