136 New year, new blog post


Happy New Year everyone. Thank goodness 2020 is over – it has been a dreadful year all across the world and I don’t feel I can begin a new year blog post without first acknowledging the huge loss and suffering the COVID-19 pandemic has caused to so many. Over 1.8 million lives have been lost to the virus worldwide (over 73 thousand in the UK), with many more left with debilitating health problems and organ damage following recovery from the virus itself. 

Another consequence of the pandemic has been the numerous lockdowns and other restrictions we have all had to cope with for many months. The practical impact and mental health consequences of this have been enormous and it’s going to take us all a long time to recover.

But 2021 is here at last! The start of a new year always brings new hope and perhaps resolve to work towards a better future. This is how I’m choosing to view today.


I have discovered a lot about myself this year.  Perhaps enduring long periods of solitude forces us to look inward and to question things more.  I have found that I am more self sufficient than I thought and despite having many down days, I have managed to pick myself up and do something about it.  Perhaps the greatest thing I have learnt is that it is no use hanging on to things/situations that no longer serve you, even if you believe everyone expects that you should. My two big decisions (taking ill health retirement and moving house) have come from this.  I realised I was putting all my energies and focus on to hanging on to my work and my home, but that both of these were causing me harm and leaving nothing for any other aspects of my life. I’m still very sad about both, but glad to have made these decisions and confident that I am doing what is right for me. 

It’ll be while until both of these come to fruition, so I’m planning to spend the next few months doing all I can to get myself ready.  Despite living alone, I have eaten and drank for too much over the last few weeks (stressful times often lead to comfort eating for me) … now need to get a grip! When your body doesn’t quite function as it should, carrying extra weight adds further stress to a messed up system. 


I’m not one for new year resolutions but by the end of January, I plan to be eating healthily, back in a proper sleep routine and moving a bit more.  And I still have a lot of sorting and packing to do too! Plenty to keep me busy. 

The other thing I have realised during this year of lockdowns, is how important people are to me, well, actually I already knew this, but this time of reflection has doubled me belief. We don’t need lots of “things” in our lives, we need authentic connection with people who mean something to us.  So, when life returns to “normal”, I’m going to focus on time with good people to help recover from this last year and invest in a better future. At this point, I’d like to say a massive thank you to friends and family who been such a great source of support. I’m not always good at staying in touch, but I do appreciate hearing from you and think of you all often.

Recent news of vaccine rollout has given us all a boost … light at the end of the tunnel at last! I think I am in group 6 on this priority list, so may still have some time to wait (but that’s fine).  


So I am starting the new year on my own, in England Tier 4 (lockdown by another name) with some feelings of trepidation, but mostly optimism for the year ahead, at least once these first few months are over. 

HSCT is still forever in my mind, although it’s obviously on the back burner for now.  The hospital in Sheffield has not resumed treatment for MSers since it was suspended in the summer; I am uncertain of the situation in London.  I know a few have braved the journey to Mexico over the last few months and others are going soon.  The hospital in Russia is continuing to treat a few patients, however, travel restrictions mean it is impossible to get there at the moment (if I understand correctly, the Russian authorities are not currently issuing visas to UK passport holders). 

I’d like to end by sharing a picture of a Facebook conversation with my friend Beth, who has recently learnt the art of Tarot reading.  This was the outcome of a little online card picker she set up.  Fingers crossed 🤞🏻🤞🏻🤞🏻

Take good care of yourselves and try to stay positive if you can.  If that doesn’t work for you at the moment, accept where you are and know that you don’t have to be strong all the time, just do your best to keep going (an achievement in itself when life is a challenge).

❤️

83 Weight gain

The time has come for me to do something drastic about my weight.  

A combination of fatigue, decreased mobility, thyroid problems and a bit of comfort eating, have caused me to gain a lot of weight over recent months.  I have always struggled with my weight and have yo-yo dieted for most of my adult life.  In the past, I could cut out snacks and be a bit careful for a few weeks and usually get things back under control, but this doesn’t seem to work these days.  So, from Tuesday I will be on a supported weight loss plan, with a hope of being slimmer and healthier in a few months time. 

On Wednesday, I had my first meeting with my 1:1 diet consultant, which included the dreaded weigh in.  I have some scales at home but have been avoiding them for a while now, but my clothes have been feeling tighter and I knew I was in for some bad news.  I am now the heaviest I have ever been and with a BMI of 30.8, am now classified as obese.  I’m feeling pretty upset about this, but am planning to use this feeling to motivate me to stick to my new diet plan. 

As you know, my HSCT treatment has been delayed until August.  I am planning to use the extra time to lose weight and increase my fitness.  Hopefully I’ll be in better shape by August, than I am now, which in turn, should have a positive impact on my recovery.

Alexandra Park, Edgeley 21.04.19

Isn’t it wonderful to see the sun shining?  I am beginning to think my spirit animal must be a bear or some other animal that hibernates!  I really am a different person when Spring arrives!  I feel so much better mentally and energy levels are up too.  Hopefully, this will all help with my plan to improve my fitness.  

A few months ago, my GP referred me to a supported scheme at my local gym, but unfortunately my fatigue and pain levels at the time meant I had to defer this. With the arrival of winter, swimming and aquafit became too challenging too. I am aiming to get all this back on track too. 

I am back at work on Tuesday after the Easter holidays and am feeling positive and ready to take on the challenges of the new term  (I am really lucky and work term time only). I think the warmer weather, lighter evenings and time spent with family and friends over the last couple of weeks have improved my mood and energy levels.  I am really grateful to all the wonderful people in my life …thank you everyone ❤️

GoFundMe

37 Some ramblings about weight gain

 

I saw my GP today to talk about various things – MS, treatment options, hypothyroidism (I have that as well) etc. She decided to check my weight and blood pressure while I was there. 

Obviously, I’m very aware that I have gained weight over the last few years.  Lots of things have contributed to this …my age is one (honestly once you hit 50, anything more than the odd nibble of celery causes weight gain). 

Anyway, my weigh in revealed that I am now the heaviest I have ever been (including when 9 months pregnant!).

I feel that MS is a major cause of my weight gain.  A few years ago I was several stone lighter, at the gym two or three times a week and generally pretty energetic.  My favourite class was Body Pump – a high energy full body work out using weights.

Ok, I didn’t quite look like this, but you get the picture!

I felt great, strong, confident …I’d love to be able to do it again.  

As my MS has affected me more and more, I have become less and less active.  I wish now, that I’d pushed myself to do more – perhaps not body pump – but not to have given in to it so much.  The symptoms of MS make exercising so difficult and of course, once you lose fitness, you become weaker and weaker, energy levels drop and it’s so hard to get motivated again. 

I have been reading a lot about the benefits of exercise to those with MS, in terms of relieving symptoms and to maintain strength in order to cope with those symptoms.  Somehow I need to find a way to get back into exercise.  

Recently, Niamh, Sophie and I have been going to an Aquafit class at my local pool – great fun and more of a work out than you might think!  For me, being in water feels amazing.  I have always loved swimming and been confident in the water and have now found it is the only place where I don’t have the constant feeling that I’m about to fall over! 

I am working on some exercises at home to improve my balance and have been referred to a scheme at my local gym where I will be allocated a trainer for 3 months.  They will help me to plan an exercise programme, help me to access appropriate classes and hopefully gently get me back into moving a bit more.  

My weight gain is not just due to lack of activity – know I’ve been comfort eating for a while now – I need to find a way to get on top of that too.  

As you all know, I am hoping to have HSCT next year.  The treatment is challenging to the body, so I want to get myself in the best shape I can, as I feel this will improve my chances of coping with treatment and having a smooth recovery. 

On a positive note, my blood pressure is “perfect”!