109 A quick update

This is just a quick post to touch base and to update you on a couple of things.  

I was going to write a post entitled “A day in the life of an MSer” but as I started writing it, I began to realise it was too bloomin miserable for public consumption! 

I’ve had a difficult couple of weeks, overwhelmed with MS symptoms and generally feeling rubbish. I didn’t manage to go to work at all last week but I’m hoping to get back to it on Monday. I think I’ll delay my “day in the life” post until I’m feeling more positive! 

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I don’t live in the same place that I grew up and I have friends and family all over the place.  I keep in touch with many by email, whatsapp, Facebook, Messenger etc and really love to hear from people.  Over the last few weeks, I’ve had lots of lovely messages from friends and family, many of which I haven’t managed reply to.  I’m sorry for being so rubbish at this.  I really do appreciate hearing from you, I’m not ignoring you, I haven’t forgotten you …I’m just struggling to deal with everything at the moment.

Something else I’m in danger of falling behind on is this blog, so this post is an attempt to address that. 

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In amongst the stressful last few weeks, I received some really good news …a letter from Professor Sharrack at Sheffield Hallamshire Hospital.  I have an appointment with him in February and he is hoping to bring this forward.  He has also asked me to bring a copy of my previous MRI scans (on a CD) so that he compare it with the scan I had in June.  It’s hard to say whether this is a hopeful step or not (I’m trying not to get my hopes up), but at least I’ll have a final answer on HSCT in the UK a little sooner previously thought.

In the meantime, we are still fundraising and aiming for my date in Russia in March. Our fundraising total now lies at …

It would be amazing to get to £20K before Christmas 🎄🎁🎅🏻

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We are asking people to think about the Christmas cards they send and consider whether there is a different way to approach this …

Are you about to hurry out to buy Christmas cards that will eventually end up in the bin? Why not help us instead…

This year, instead of buying Christmas cards or receiving a Secret Santa present, please consider donating the money you would usually spend to our fundraiser?

Not only would this help us to get a little bit closer to our target, but it would also help to save our planet and hopefully relieve some Christmas stress!

It is estimated that around 900 million Christmas cards are sent each year in the UK. When you factor in postage costs, that’s a lot of money on something that will be forgotten about in just a few weeks time.   Why not send an e-card, text, WhatsApp or Facebook message to wish your loved ones a happy Christmas …real life hugs and good wishes are even better! ❤️

Thank you so much for anything you are able to donate.  Please share this idea with your family and friends and anyone you know who would like to find a way to help others at Christmas time 🎅🎄❤️

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Our next fundraising event is the Vintage Village Merry Little Christmas Fair on Sunday 8th December from 10am till 4pm.  Thank you for all your kind donations of items to sell 😘

Please come along and join us if you can …I’ve heard there will be mulled wine! 🍷

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69 Friends

I just wanted to send a message to friends everywhere, to apologise for being such  a rubbish friend these days!  

Although I am working slightly fewer hours these days, I still find that work takes up a lot of my time and energy (spoons!).  Whatever I have left is spent stressing over fundraising!  If the truth be known, I really don’t like the situation I find myself in and hate having to ask people for money.  It’s all so time consuming, stressful and a little humiliating.  I tend to be quite open with friends and family, but don’t share my whole life with everyone.  Yet here I am sharing my thoughts and information on my life and my health with anyone who wants to read it!  

With all my physical and emotional energy going in to fundraising, worrying about fundraising and trying to win the lottery, I know I am neglecting the people around me.  I’m sorry for that.

If I owe you a text or phone call or an email, or a coffee or a night out, I hope you can bear with me while I’m so distracted with everything else.  Please keep in touch xx

All of this has made me realise that life is going to be very different for me for the next 6 months or so.  I’m planning to work hard at the fundraising until our evening do on 23rd February.  At that point, I’ll try to borrow whatever is outstanding and get my treatment paid for.  Then I’ll have 2 months to plan and prepare! 

My trip to Russia will take a month and I’ll need to take things very slowly when I get back.  I’m hoping normal service will resume by Autumn …that really does sound a long way away.  I know I will have some wobbles on this journey and there’s a lot I can’t even think about yet, but at the moment, I’m feeling positive and determined, which will do for now! 

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Event tickets £10 each

Saturday 23rd February  … Bonis Hall, Prestbury

Raffle tickets 50p each 

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